Meaningful patient and public involvement can help ensure that antimicrobial research reflects the priorities, experiences and needs of people affected by drug-resistant infections. The resources in this section provide practical guidance on planning and evaluating involvement, identifying and supporting appropriate contributors, and incorporating lived experience into research priorities and product-development decisions. They also signpost to patient networks, charities and advocacy groups that teams could approach for further engagement, insight and support.
Resources
7 resourcesProvides practical, step-by-step guidance for involving patients in early discovery and preclinical research, helping teams identify relevant patient partners and incorporate patient perspectives into research priorities, indication selection and early product development decisions.
Provides guidance on meaningfully involving patients, carers and patient representatives throughout industry-led medicines research and development. It covers practical considerations such as preparation, agreements, compensation, communication and evaluating impact.
Brings patients, carers and healthcare professionals together through Priority Setting Partnerships to identify unanswered questions and agree the most important priorities for future research. Current Priority Setting Partnerships related to AMR include Healthcare Associated Infections, Sepsis, Community Acquired Pneumonia in Adults and Chronic and Recurrent Urinary Tract Infections.
Vocal connects patients, carers and communities in the UK with health research, enabling their experiences to inform future diagnosis, treatment and care. Its AMR Network includes people affected by recurrent infections, long-term antibiotic use or resistant infections. Members can contribute through discussion groups, surveys and other opportunities, sharing their experiences to help improve research into how antibiotics are used.
AMR Action UK is a UK patient charity supporting people and families affected by antimicrobial resistance. It provides information and support, funds patient-focused research, helps people with lived experience influence policy and healthcare, and campaigns for practical changes to reduce harm from drug-resistant infections.
The WHO Task Force of AMR Survivors brings together people who have experienced drug-resistant infections, either as patients or caregivers. Members share their experiences, contribute to WHO discussions and campaigns, and advocate for improvements in AMR awareness, patient care, research, policy and funding.
The AMR Narrative is a UK charity that supports patients and the public to become involved in tackling antimicrobial resistance. It builds advocacy skills, raises awareness, shares stories and creates opportunities for people worldwide to connect and contribute to AMR discussions and action.